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VERSION:2.0
PRODID:icalendar-ruby
CALSCALE:GREGORIAN
BEGIN:VEVENT
DTSTAMP:20260923T194420Z
UID:ad188fff-ef7c-47bf-8f5c-e60191c681a3
DTSTART:20230209T090000Z
DTEND:20230209T170000Z
DESCRIPTION:Health data collected in cohort studies are valuable sources fo
 r knowledge generation and the advance of biomedical research. However\, t
 he use of these data for research projects beyond the initial purpose rais
 es several ethical\, legal\, and societal questions regarding the sensitiv
 ity of genomic data sourced from vulnerable and ethnic groups\, such as Af
 rican genetic data and material.\n\nThe webinar addresses these challenges
  regarding reuse of health/genomic data in CINECA from the ELSI perspectiv
 e and FAIR principles\, and highlights GDPR provisions and their instituti
 onal sources of interpretation\, national laws\, the corresponding legal\,
  ethical\, and social science literature\, as well as outcomes from stakeh
 older engagement workshops with patient representatives\, African research
 ers\, and CINECA technical experts. The webinar provides ethical and legal
  recommendations that take societal implications into account for data acc
 ess to European\, Canadian\, and African cohorts and responsible sharing m
 ainly on four key areas: (1) Engagement and benefit sharing as prerequisit
 es for data sharing\, (2) Informed consent and reuse of data\, (3) Safegua
 rds and respect for privacy\, and (4) Further uses and data-access. The we
 binar concludes with an outlook on upcoming ELSI developments regarding da
 ta reuse\, synthetic data\, and artificial intelligence (AI).
LOCATION:\, 
SUMMARY:The case of data reuse: ethical\, legal\, and societal issues in in
 ternational genomic data access and sharing
URL;VALUE=URI:https://www.ebi.ac.uk/training/events/case-data-reuse-ethical
 -legal-and-societal-issues-international-genomic-data-access-and-sharing
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